Resources

Angel Flight

 

“Angel MedFlight is the air ambulance industry’s premier air medical transport provider. We know that each patient is unique and we will go to any length to ensure that each transfer is as smooth, comfortable and stress-free as possible. You may contact us at 877-ANGEL70 at any time; we are available 24 hours a day, 7 days a week, 365 days a year”

Contact info for Angel Medflight

Phone: (877) 264-3570 – (877) ANGEL-70

International Dialing: (480) 634-8017

Facsimile: (888) 883-9506

International Facsimile: (480) 247-4603

Email: info@angelmedflight.com

 

Ask Dr. Karen

 

Dr. Karen, Cushing’s survivor and Cushing’s patient advocate answers questions online pertaining to chronic illness, the emotional and psychological impact of chronic illness, coping, and other related issues. Questions can be submitted by e mailing drkarenthames@epictogether.org

Website: http://www.youtube.com/drnkarenthames

 

Battleground Diagnosis

 

The War to Survive Cushing’s Disease”: Full length feature Documentary film about Cushing’s patients and their fight to survive Cushing’s Syndrome. Supplemental educational disc will be included and geared towards increasing awareness in the medical community as well as the general public. CoProducers include Dr. N. Karen Thames and Marc Harris.

Website: http://www.battlegrounddiagnosis.com (under construction)

You can like the documentary page on Facebook: http://www.facebook.com/Hug.A.Cushie

 

Cushing’s with Moxie

 

Melissa Moxie is a powerful advocate in the Cushing’s community. A survivor of Cushing’s Disease, after multiple surgeries and a long journey, she is a warrior in her own right. Taking her adversity, she has turned it into an opportunity to give back to the community. She is a tremendous resource!

 

“Genetics and runaway appetite are not the only causes of obesity. Sometimes, your own body can turn against you in ways you never thought possible.” ~The Science of Obesity

 

http://cushingsmoxie.blogspot.com/

 

Cushings-Help

 

Cushing’s survivor Mary Kelly O’Connor has dedicated the last two decades of her life giving back in a mighty way! She pioneered community building through social media and was the first advocate to help increase awareness as well as create a space for others to learn more about their illness as well as share with others. She continues to do this tremendous work and offers valuable resources to the community and their loved ones.

http://www.cushings-help.com

 

Cushing’s Connection Advocacy Program

 

Go to http://www.cushingsconnection.com There you will find an abundance of information along with the option of being paired with a patient advocate who can help you with your journey with Cushing’s Syndrome/Disease. In addition, they offer a free for all symptom tracker to help track your symptoms for optimal symptom management along with an organized way of communicating with your doctor.

 

The EPIC Foundation

 

Empowering People with Invisible Chronic Illness (EPIC) Foundation is a 501C3 nonprofit organization. The EPIC foundation provides support, advocacy, education and tools to people who are affected by chronic illness. This foundation will provide various resources to help people through the process of living with their chronic illnesses. EPIC supports patients and caregivers facing chronic diseases including Cushing’s Disease, Secondary Adrenal Insufficiency, Addison’s/Adrenal Insufficiency, and Growth Hormone Deficiency. The EPIC Foundation’s staff includes Psychologists trained in helping patients and caregivers.

 

The EPIC foundation is unique due to the nature of how we embrace the mind, body, and spirit rather than only the actual disease. The EPIC Foundation intends to address vital issues such as trauma and suicidality which affect the community.

 

Kathy’s House

 

Kathy’s house is your home away from home when seeking medical care or surgery in the Milwaukee/Brookfield, WI area. Through this program, you and your caregiver can receive free lodging during the time of your treatment. It is sponsored through donations. You are not required to pay a fee during your stay. Guests receive their own spacious bedroom.

 

“Kathy’s House is a non-profit hospital hospitality house designed to accommodate individuals visiting Milwaukee area hospitals for medical treatment as well as their caregivers. To make arrangements to stay at Kathy’s House, you must first have a referral faxed to Kathy’s House by a Health Care Professional familiar with the patient. Kathy’s House does not charge guests to stay. Guests are asked to make a donation to Kathy’s House.”

Contact info:

Kathy’s House, Inc.

600 North 103rd Street

Milwaukee, Wisconsin 53226

(414) 453-8290

 

 

NADF (National Adrenal Diseases Foundation)

 

“The National Adrenal Diseases Foundation is a 501(c) (3) non-profit organization dedicated to providing support, information and education to individuals having Addison’s disease as well as other diseases of the adrenal glands.”

 

NADF supports those who have a history of Cushing’s Disease and suffer from Primary or Secondary Adrenal Insufficiency. NADF is committed to bringing information regarding these rare diseases into the public’s awareness to facilitate early diagnosis and treatment. NADF sponsors support groups across the country allowing for an exchange of ideas and feelings by individuals who share a common illness. NADF members receive quarterly newsletters, educational materials, and access to a library of related information.”

http://www.nadf.us

 

NORD (National Organization for Rare Disorders)

 

NORD helps people who are trying to get a diagnosis for Cushing’s. They may help with copays, deductibles, and travel and lodging! If you need help, call them. The direct contact is Melyssa Antonio and she can be reached at 800 999 6673 EXT 240

Pfizer Program

 

If you are using a Pfizer drug including Growth Hormone and Cortef, you may be eligible for copayment assistance or even full coverage of your medications. You can explore these options by visiting http://www.pfizerhelpfulanswers.com Advocacy Programs

 

Total Disability Discharge

 

Did you know that you can get a total discharge from your student loans?!!!! If you owe student loans, you can have them forgiven if you are on disability and/or you can get your physician to vouch for you. The number to call is 888-303-7818 and website is http://www.disabilitydischarge.com/