John’s Foundation for Cushing’s Awareness

The EPIC Foundation proudly works in alliance with The John’s Foundation for Cushing’s Awareness. A Pediatric nonprofit Cushing’s organization. To learn more information about this affiliate, you can go to jfcainc.com.

Together, We are EPIC!

A message from our Affiliate:

 

John’s Foundation for Cushing’s Awareness was established in 2007.  This was after having a son diagnosed with Cushing’s Syndrome.  John was 5 1/2 years old when he was diagnosed with this horrific disease.  After his surgery, I worked with another group but they were strictly for adults.  What about our children?  What about the families of these children?  While I was waiting for John to come out of recovery I promised God I would never let another family go through this alone.  I have tried to help families with information and just being here for them.  I didn’t want to see another family go through this the way we did.  When John was diagnosed I had never even heard of Cushing’s but now I talk to doctors, families, senators and governors about this disease.  I have had seven proclamations signed by our governors.  I have sent many Build A Bears out to so many of our children so they have something to hold on to not be made fun of and have someone to talk to.  I consider myself the female Jerry Lewis for children with Cushing’s.  They are all my kids.

 

Sincerely,

Donna Sellers, President

Johns Foundation for Cushings Awareness

678-267-9497 cell