The EPIC Foundation proudly works in alliance with The John’s Foundation for Cushing’s Awareness. A Pediatric nonprofit Cushing’s organization. To learn more information about this affiliate, you can go to jfcainc.com.
Together, We are EPIC!
A message from our Affiliate:
John’s Foundation for Cushing’s Awareness was established in 2007. This was after having a son diagnosed with Cushing’s Syndrome. John was 5 1/2 years old when he was diagnosed with this horrific disease. After his surgery, I worked with another group but they were strictly for adults. What about our children? What about the families of these children? While I was waiting for John to come out of recovery I promised God I would never let another family go through this alone. I have tried to help families with information and just being here for them. I didn’t want to see another family go through this the way we did. When John was diagnosed I had never even heard of Cushing’s but now I talk to doctors, families, senators and governors about this disease. I have had seven proclamations signed by our governors. I have sent many Build A Bears out to so many of our children so they have something to hold on to not be made fun of and have someone to talk to. I consider myself the female Jerry Lewis for children with Cushing’s. They are all my kids.
Donna Sellers, President
Johns Foundation for Cushings Awareness