Commitees List

The EPIC Foundation Committees            

The EPIC Foundation has various committees. The members of the committees are volunteers who are also members of The EPIC Foundation. The EPIC Foundation proudly believes in acknowledging the strengths, skills, and backgrounds from within the chronic illness community. We understand the loss of identity experience when living with a chronic illness and feel that it empowers us to do something that we are passionate about! The EPIC Foundation contains the following committees:

Advocacy Committee: The EPIC Foundation’s Advocacy committee is dedicated to helping you! This committee understands all of the struggles that come with seeking a diagnosis, searching for answers, finding an adequate expert, and having adequate resources to see you through the journey! This committee helps with providing tools and resources for members to do things that will help you advocate for yourself. We understand the value of self-advocacy and the empowerment that comes with it. The Advocacy Committee will help you to learn more about your illness, help members learn key tips for fundraising for your own medical expenses, walk you through finding the right doctors, and/ or walk you through insurance issues. Our insurance specialist is committed to helping you understand what your rights are as a consumer of your insurance plan and as a patient.

This Committee Chair is Terri Milam,RN. She can be reached at terri@epictogether.org or Toll Free at 888-862-5554 Ext. 710

The Co-Chair of this committee is Rohnda McCloskey. She can be reached at rohnda@epictogether.org or Too Free at 888-862-5554 Ext. 718

If you are having insurance issues or battling some part of your medical journey, please contact our On-Staff Social Worker, Alicia Held, MSW. We are here to help! Alicia can be reached via e mail at alicia@epictogether.org or phone at 888-862-5554 Ext. 704 Toll Free

Caregiver Support Committee: This committee is committed to maintaining a connection with the caregivers and loved ones who seek support from The EPIC Foundation. We understand that the chronic illness journey also impacts loved ones. As a caretaker, you can reach out to the committee any time and expect a warm response.

This Committee Chair is Craig S. Thames, M.S. He can be reached at craig@epictogether.org or Toll Free at 888-862-5554 Ext. 703

Patient Support Committee: This committee makes sure that the EPIC Foundation maintains a connection with the patients who seek support from us. Expect a periodic phone call from us, expect for us to advocate for patients publicly, and expect educational materials that will help guide you through the process of living with a chronic illness.

The Chair of this Committee is Erin Gallagher. She can be reached at erin@epictogether.org or Toll Free at 888-862-5554 Ext. 715

The Co-Chair of this Committee is Meagan Jenkins.  She can be reached at meagan@epictogether.org or Toll Free at 888-862-5554 Ext. 714

Outreach Committee: This committee responds to things that impact the Cushing’s population and related illnesses and other chronic illness populations. For instance, the Outreach Committee finds ways to bring awareness to various illnesses that very little is known about. There are people out there who don’t even know what is going on with their bodies.The Outreach Committee engages in positive ways of increasing awareness of the illness. The outreach committee also takes action when there are things that would negatively impact the community.Our current project is to address the changes that have been made to the DSM (Diagnostic and Statistical Manual of Mental Disorders). There are changes to the DSM (guidebook of psychiatry) that impact the field’s view on trauma. Many chronic illness patients have been diagnosed with PTSD due to their experience with the illness, many illnesses which are life threatening. However, the new DSM V does not acknowledge chronic illness or even terminal illness as a trigger for trauma. This impacts the community greatly in terms of the way mental health professionals will approach them in treatment.It also impacts things like disability and its criteria. The outreach committee will attempt to reach out to the American Psychological Association, the trauma board of the DSM V, and other networks that are involved, and make an impact for positive change.

This Committee Chair is Dr. N. Karen Thames. She can be reached via e mail at drkarenthames@epictogether.org or phone at 888-862-5554 Ext. 700 Toll Free

The other Committee Chair is AshleyRose Waltner. She can be reached via e mail at ashleyrose@epictogether.org or phone at 888-862-5554 Ext. 720 Toll Free

Medical Networking Committee: This committee is responsible for reaching out to endocrinologists, surgeons, and other doctors that impact our population. People in this committee will actually gain the involvement of doctors towards the research, awareness, and improvement of the various chronic illness communities. This committee seeks to bridge the gap between medical doctors and patients and also mental health professionals and patients.If you are a medical professional or mental health professional and are interested in joining us in this effort and desire to form connectedness with the community, please contact us. We are beyond interested in working with you!Please contact our Medical Networking Chair or Co-Chair

This Committee Chair is Nancy Montgomery, RN. She can be reached at nancy@epictogether.org or Toll Free at 888-862-5554 Ext. 711

The other Chair is Max Gruici. Max can be reached at max@epictogether.org or Toll Free at 888-862-5554 Ext. 708

Mental Health/Emotional Support Committee: This committee is here to provide emotional support to you during this trying time. The committee consists of mental health professionals and paraprofessionals who are committed to being a safe place for you.This committee has volunteers in every state throughout the country that plan support group meetings. These meetings take place every 3 months. The committee is here for you through every tragic loss and every painful step.

The Director of Mental Health Services and Case Management is Alicia Held, MSW. She can be reached at alicia@epictogether.org or Toll Free at 888-862-5554 Ext. 704

Education Committee: This committee is solely responsible for aiming to educate the general public about Cushing’s and related illnesses and other chronic illnesses. Additionally, this committee actively participates in academic research of literature on the various chronic illnesses we service. For members looking for empirical research on a particular aspect of your illness, the Education Committee can assist with that. Reach out to them and give them an opportunity to do the research and get back to you. Also, if you have research, articles, or valuable materials that you would like to share with this committee, please feel free to contact them.

This Committee Chair is Monica Howell. She can be reached at monica@epictogether.org or by phone at 888-862-5554 Ext. 712 Toll Free

Website maintenance committee: This committee handles all aspects of maintaining the EPIC website. If you have a question pertaining to our website, you can contact the chair and she will return your inquiry at her earliest convenience.

The Director of this Committee is Amber Nicholas-Patterson, MS.Ed. She can be reached at amber@epictogether.org or Toll Free at 888-862-5554 Ext. 713

Legacy Committee: This committee is solely responsible for honoring the legacy of those we have lost in the community. This committee will specifically focus on honoring those legacies in the most respectful way! It is important to us at The EPIC Foundation that we give honor to your loved one! If you have a friend or loved one who has passed away and you don’t see him/her on our legacy page, please feel free to contact us to allow us to honor your precious loved one!

This Committee Chair is Meagan Jenkins. She can be reached via e mail at meagan@epictogether.org or phone at 888-862-5554 Ext. 714 Toll Free

Convention Planning Committee: This committee actively works on planning the annual convention for EPIC. The committee consists of members of the organization who are committed to making sure that all of the details of the convention come together. We celebrate the coming of our first annual convention in August, 2018!

This Committee Chair is Dr. N. Karen Thames. She can be reached via e mail at drkarenthames@epictogether.org or phone at 888-862-5554 Ext. 700 Toll Free

The other Chair of this committee is Nicolette Vergara. She can be reached via e mail at nicolette@epictogether.org or phone at 888-862-5554 Ext. 702 Toll Free

Development Committee: If you are interested in talking with someone about donating to The EPIC Foundation, this is the committee that you should contact. This committee focuses on obtaining adequate funds that are needed to provide the vital services that The EPIC Foundation offers to the chronic illness community.The Development Committee plans fundraising events that are open to sponsors and potential members who would like to see, up close, what The EPIC Foundation represents.Please reach out if you have any comments or questions about funding for The EPIC Foundation.

The Chair of this committee is Carolyn Pilgrom. She can be reached at carolyn@epictogether.org or Toll Free at 888-862-5554 Ext. 717

The Co-Chair of this committee is Alicia Held. She can be reached at alicia@epictogether.org or Toll Free at 888-862-5554 Ext. 704

Social Media, Engagement, and Publicity Committee: This committee helps to maintain a relationship between The EPIC Foundation and the public. The EPIC Foundation wants to ensure that our members’ voices are heard.Our desire to have a presence is solely based on wanting to gain visibility of these chronic illnesses, many of them are rare and some of them are life threatening. Visibility helps save lives! Social media is a vital part of our outreach efforts to our members as well as our efforts to help our voices to become stronger!Additionally, Dr. Karen engages in presentations to the public, medical community, and fellow warriors. Her motivational talks are meant to inspire others to move through adversity and recognize themselves for the warriors they really are.

If you would like to schedule a speaking engagement, interview, or another public appearance with Dr. Karen and The EPIC Foundation, please contact this committee.

The Director of this Committee is Autumn Boyet Stinton. She can be reached via e mail at autumn@epictogether.org or phone at 888-862-5554 Ext. 719 Toll Free

If you are a member of The Epic Foundation and are interested in volunteering/participating in one of the aforementioned committees, please contact us at admin@epictogether.org or 888-862-5554 Toll Free.