Advocacy Committee

The EPIC Foundation Advocacy Committee

 The EPIC Foundation’s Advocacy committee is dedicated to helping you! This committee understands all of the struggles that come with seeking a diagnosis, searching for answers, finding an adequate expert, and having adequate resources to see you through the journey! This committee helps with providing tools and resources for members to do things that will help you advocate for yourself. We understand the value of self-advocacy and the empowerment that comes with it. The Advocacy Committee will help you to learn more about your illness, help members learn key tips for fundraising for your own medical expenses, walk you through finding the right doctors, and/ or walk you through insurance issues. Our insurance specialist is committed to helping you understand what your rights are as a consumer of your insurance plan and as a patient.

If you are having insurance issues or battling some part of your medical journey, please contact our On-Staff Social Worker, Alicia Held, MSW. We are here to help! Alicia can be reached via e mail at or phone at 888-862-5554 Ext. 704 Toll Free

Together, we are EPIC!