Invisible Illness: What are they? Who is Affected? How Can I Become More Aware?
Alicia M. Held, MSW
Maybe you have read the term “invisible illness” on a friend’s Facebook feed, or have recently read an article raising awareness for those who are marginalized because they do not have a “readily visible” disability; but what really is an “invisible” illness or disability? Let’s start with the definition of disability …
What is The EPIC Foundation
The EPIC Foundation provides support, advocacy, education and tools to people who are affected by chronic illness. This foundation will provide various resources to help people through the process of living with their chronic illnesses. EPIC supports patients and caregivers facing chronic diseases including Cushings Disease, Secondary Adrenal Insufficiency, Addisons / Adrenal Insufficiency, and Growth Hormone Deficiency. EPIC’s staff includes Psychologists trained in helping patients and caregivers.
The EPIC Foundation is unique due to the nature of how we embrace the mind, body and spirit rather than only the actual disease. The EPIC Foundation intends to address vital issues such as trauma and suicidality which affect the community.”
The Mission Statement: Empowering People with Invisible Chronic Illness (EPIC) is a nonprofit organization that seeks to empower those living with chronic illness. EPIC offers support, advocacy, and tools for coping to those living with chronic illness and their loved ones and caregivers, with a particular focus on Cushing’s Syndrome and related illnesses.
Look out for details about our upcoming conference, August 9th-12th, 2018
Person of the Month
The first person of the month is Meagan Jenkins. Meagan is a fellow Cushie warrior who, against all odds, fought to get an adequate diagnosis and treatment, fought for her life, and continues to fight to thrive.
Find a Psychologist / therapist
Why we are EPIC together
The EPIC Foundation strongly believes in community, which has helped so many of us survive the unimaginable! EPIC Foundation is here to support YOU! We understand that through unity and by working together, we create and maintain a level of connectedness that empowers us! We are empowered TOGETHER!!!
Rules of Empowerment
Sometimes when we are chronically ill, it can feel very powerless. That sense of loss can be so overwhelming that we feel that we have no power at all. Being empowered is having a strong sense of self and maintaining a sense of self no matter the circumstances…
How people have been impacted by EPIC Foundation
Dr. Karen Thames has been a constant in my life throughout my journey with my illness. Dr. Thames has provided me and many others in the Cushing’s community with literature, helpful information on our illness, and extensive emotional support for our community. Dr. Thames has not only provided these things to me and others but she has reached out to me personally and shared a gift that was able to raise awareness for our disease. Karen is not only a wonderful, caring woman but she is also a very altruistic, hardworking woman that is determined to help others in need. She will always have my gratitude
In honor of the warriors we have lost. The EPIC Foundation honors your legacy forever!
Alice Baker in Memoriam
Alice M. Crowe Baker of McKean, Pennsylvania succumbed to lung cancer and Cushing’s on Thursday October 3, 2002. Fellow Cushie and friend, Judy, called the Monday after her passing to check on her and learned of her …
Bonny Ham in Memoriam
Bonny Hamm of Australia, lost her battle with adrenal Cushing’s and cancer on October 12, 2009. She was only 45 years old at the time of her death, succumbing to complications from Cushing’s as far too many Cushies who have died far too young have.
Charles Hamilton Hawn, IV in Memoriam
Charles Hamilton Hawn, IV was born in 1923 in Braddyville, Iowa. He worked as a nurse on the transport ship USS Barb during World War II. After he graduated high school at 16 years old, he enrolled at …
Look out for Dr. Karen’s new book coming soon: “Indomitable! Lessons I have learned in the Midst of fighting and Overcoming Cushing’s Disease!” A book that will encourage and guide you, inspire and empower you!
To reach Dr. Karen’s book agent regarding this project, please contact Public Relations Specialist, Cheryl Dunlap, via e-mail at email@example.com or phone at 888-862-5554 Ext. 722