Invisible Illness: What are they? Who is Affected? How Can I Become More Aware?
Alicia M. Held, MSW
Maybe you have read the term “invisible illness” on a friend’s Facebook feed, or have recently read an article raising awareness for those who are marginalized because they do not have a “readily visible” disability; but what really is an “invisible” illness or disability? Let’s start with the definition of disability …
What is The EPIC Foundation
The EPIC Foundation is a 501C3 non-profit organization that provides support, advocacy, education and tools to those affected by chronic illnesses. The foundation staff, which includes trained psychologists, provides various resources to support patients living with chronic illnesses and their caregivers.
The EPIC Foundation uniquely embraces the mind, body, and spirit, by focusing on key human issues such as trauma and loss. These are the vital issues that are commonly ignored while treating chronic illnesses.
Mission Statement: Empowering People with Invisible Chronic Illness (EPIC) Foundation is a nonprofit organization that seeks to empower those living with chronic illness. EPIC offers support, advocacy, and tools for coping to those living with chronic illness and their loved ones and caregivers, with a particular focus on Cushing’s Syndrome and related illnesses.
Suggestions or comments can be e mailed to The EPIC Foundation at firstname.lastname@example.org
Details about our first annual EPIC convention can be found under “Promotions/Exciting News” at the top of the page.
Featured Key Note speaker, Teresa Tapp of T-Tapp, Inc. You can do it! #YesYouCan
Person of the Month
“Mary Kelly O’Connor”
The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer! Mary Kelly O’Connor…
Help and Advocacy
Why we are EPIC together
The EPIC Foundation strongly believes in community, which has helped so many of us survive the unimaginable! EPIC Foundation is here to support YOU! We understand that through unity and by working together, we create and maintain a level of connectedness that empowers us! We are empowered TOGETHER!!!
Rules of Empowerment
Sometimes when we are chronically ill, it can feel very powerless. That sense of loss can be so overwhelming that we feel that we have no power at all. Being empowered is having a strong sense of self and maintaining a sense of self no matter the circumstances…
How people have been impacted by EPIC Foundation
I cannot say enough about how Dr. Karen Thames and the EPIC Foundation have helped me. At a time when I was looking for supportive resources and a way connect with someone who could relate to what I was going through, I found Dr. Karen. Her fight to transparently share her journey so that she could help others has inspired me to do the same. The work and dedication that she puts into the EPIC Foundation is indescribable and I could not think of a better way to support her efforts than to join the team!
In honor of the warriors we have lost. The EPIC Foundation honors your legacy forever!
Arshun Lewis in Memoriam
Arshun Lamonda Lewis was born on March 16, 1984 to Lee Knowlin and Joyce Augustus in Racine, Wisconsin. She attended Park High School and furthered her education at Gateway Community Tech…
Bonny Ham in Memoriam
Bonny Hamm of Australia, lost her battle with adrenal Cushing’s and cancer on October 12, 2009. She was only 45 years old at the time of her death, succumbing to complications from Cushing’s as far too many Cushies who have died far too young have.
Barbara “Cookie” Rothenberg in Memoriam
Barbara “Cookie” Rothenberg was an integral member to the Cushing’s community, and one of the founding members of the international organization The CUSH Foundation. She was the wife of Jerry…
Look out for Dr. Karen’s new book coming soon: “Indomitable! Lessons I have learned in the Midst of fighting and Overcoming Cushing’s Disease!” A book that will encourage and guide you, inspire and empower you!
To reach Dr. Karen’s book agent regarding this project, please contact Public Relations Specialist, Cheryl Dunlap, via e-mail at email@example.com or phone at 888-862-5554 Ext. 722